Do you know any doctor in rare disease research? Thanks in advance.

Stephanie

Medical Research—We need a Dr. on rare disease research 分類：health2009/04/28 01:01Subject: Re: Creatine Pathway and Molybdenum Cofactor Disorders Research Study

Dear Ms Wu,
Does this patient have a confirmed diagnosis of molybendum cofactor deficiency?
We would be happy to assist with urinary S-sulfocysteine measurements and with mutation analysis.
A urinary purine screen would also be necessary to measure xanthine/hypoxanthine and uric acid.

If the patient has a confirmed diagnosis, we would be happy to put the parents in contact with experts in the field.

Best regards,
Sarah

Freedom_writerr note:

Can anyone suggest a Dr. for rare disease research, he or she will work together with this patient’s family in Taiwan with medical research team in US? Please email me directly freedom_writerr@yahoo.com thanks.

If it is okay with you, please send me directly to my email box; freedom_writerr@yahoo.com and hear from you soon.

Best Regards,

Stephanie

Sure thing! I am glad if I could do anything to move forward.

Best regards,
Dr.Lin

Indeed, I do think this is part of education for people to believe "mental illness"can be treated with professional help that is why my mom wants me to go back to team work with her. Somehow my career path has changed a lot, I only like to do this part as part of my retirement plan for charity after 10 years. Meantime, let’s keep in touch and I will referral you a patient if I have any. I am sure that you will be great for my future network in Taiwan since I like to create a medical professional group network around the world. Thanks again for your reply.

Best Regards,

Stephanie

I am expecting a very prmosing future for Taiwan psychiatric service either in medical or social affair.
Combined with psyhoclogical intervention with medical treatment, patients usually have a better prognosis than before. of course it is nor perfect at this moment really.
But in the field of pharmalogical intervention and cost barriers, I personally think it is better than US.
in term of psychotherapy, people tend to have unrealistic expectation. It is not a one stop shop, however, people don’t think that way.
right now , I think "social marketing" is the main issue and our tasks.

Hope this comment helps!!!

Many years ago I studied clinical psychology in BA in US, during that time, a very closer friend as my dry sis, he suffered mental illness. I was her break down in front of me, somehow I was unable to bear the pain. I then changed my major to something else. I still have deeply connected with her case till now. Few years ago, I was able to reach her and she did write me a letter. Poor her without any care, what is her future? Now, I could not locate her even with my other friend tried to search her. I could understand her intention from her last letter that she wants to find a job and she seeks for my help. Now, finally I am able to focus on mental issue again and I need a team work and a group of passionate professionals. Somehow I find none in Taiwan. Hopefully, you are the first one to connect from. That was a piece of deep lost I ever feel with Taiwan. I like to know how your vision for Taiwan future mental health. What can we do to improve? Most people don’t talk to Dr. but instead they talk to their God. We all knew that takes both to work. I am looking forward to hear from you.

p.s. During my mom’s work in Taiwan she has encountered so many different types of mental illness, we have been discussed for many years. My mom only wish if someday I can go back Taiwan to work on it.

Best Regards,

Stephanie

Welcome to my blog. Actually I am no expert in welfare affair. And it seems that only psychiatric disability welfare catch my atttention.
I am not really follow your question. could it be more specific?What opinion? to whom?

But still it is nice to hear someone in such topic. You can find more info in Taipei Social Affair Bureau. Glad to help and welcome to leave more message or opinions.

Best regards,
Dr. Lin

A very interesting blog you have, I wonder how well do you know disability benefit in Taiwan? Please read my blog to follow the story regarding to my question. I hope to hear your opinion.

Best Regards,

Stephanie in US